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Incontinentia Pigmenti France - maladie rare

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Making people aware of the desease Print E-mail
dimanche, 03 décembre 2006

We try to make the desease known in the media and in the streets by:

  • taking part in the march for rare deseases  during the  Telethon weekend
  • taking part in Operation ‘Red Nose’ organized by the FMO
  • running a website dedicated to IP
  • creating a mobile site so as to be ready to take part to any event
 
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