Skip to content

Incontinentia Pigmenti France - maladie rare

Treatment Print E-mail
samedi, 02 décembre 2006
Disinfectant and sometimes anti-inflammatory treatment are used locally on the skin lesions mainly to prevent secondary infection.
The teeth will be watched and treated mainly after the second teething.
The proliferation of blood vessels on the eye retina will be treated using a laser.
Epilepsy and other neurological disorders are not specific to IP and are treated as usual.
However a work group is being set up in order to study specific forms of epilepsy in children with IP as it seems the inflammatory process is somewhat different from the one observed in other cases of epilepsy.
Concerning the gene itself a therapy might consist in grafting the lost – 4…10 -- segment as early as possible on the abnormal gene but this therapy won’t be available yet in the near future.
 
[ Back ]

Flash Info

There are no translations available

  « l’Assemblée Générale Ordinaire de l’association aura lieu le samedi 24 mars de 10h à 16h . Dans les locaux de l’Alliance Maladies Rares, Hôpital Broussais 96, rue Didot – 75014 Paris .Si vous désirez davantage d’informations, vous pouvez contacter Jacques Monnet au 04 78 35 96 32 Ou Véronique Douillet au 01 40 96 97 88 »